The PTEN Hamartoma Tumor Syndrome Foundation was founded in December 2013. The organization's mission is to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. The organization is rapidly growing and realized incredible success since its inception. The PHTS Foundation held two successful patient symposia doubling in size and is currently planning its third annual patient and scientific symposium to be held at Boston Children's Hospital on May 29, 2020. The foundation launched the community's first-ever IRB approved patient-powered registry and natural history study and is currently developing a PTEN biobank open to all PTEN researchers.
(PRWeb February 04, 2020)
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